Explore these Helpful Links

If you're looking for more information about lupus or lupus nephritis, or you want to connect with other members of the lupus/lupus nephritis community, the following groups can help. At this time, there are no known advocacy groups specifically focused on lupus nephritis as a standalone disease... but that will likely change as awareness of this disease increases. Maybe you can play a role in getting something started!

Do you know of any other lupus or lupus nephritis groups that may be missing from this list? If so, let us know!

Please note that Aurinia does not endorse or monitor the activities and content of advocacy groups, their websites or third-party online communities.

National Groups

American Association of Kidney Patients

The American Association of Kidney Patients is dedicated to improving the quality of life for people with kidney disease through education, advocacy and management along with fostering support communities.

AAKP logo


Lupus and Allied Diseases Association

An all-volunteer national nonprofit organization dedicated to enhancing the quality of life for those impacted by lupus and allied diseases and other conditions of unmet need by fostering collaboration among stakeholders and promoting innovative advocacy, awareness and biomedical research programs.

Lupus Allied Diseases Association logo


Lupus Foundation of America

A national organization devoted to improving the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

National Resource Center on Lupus: Developed by the Lupus Foundation of America, the National Resource Center on Lupus provides up-to-date information and resources for the lupus community.

Local Chapters: Find state and regional chapters of the Lupus Foundation of America using this interactive map.

Lupus Foundation of America logo


Lupus Research Alliance

The mission of the Lupus Research Alliance is to find better treatments and ultimately prevent and cure systemic lupus erythematosus (SLE or lupus) by supporting medical research.

Lupus Research Alliance logo


National Kidney Foundation

An organization in the U.S. dedicated to the awareness, prevention, and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk.

National Kidney Foundation logo


Nephcure Kidney International

An organization committed exclusively to supporting research to better understand and treat Focal Segmental Glomerulosclerosis (FSGS), Nephrotic Syndrome, and related kidney diseases.

Nephcure Kidney International logo

Regional and Local Groups

Kaleidoscope Fighting Lupus

Kaleidoscope Fighting Lupus educates the public and informs the medical community about lupus, advocates for an earlier life-saving diagnosis, supports people living with lupus and collaborates with government and foundations to fund research towards a cure.

Kaleidoscope Fighting Lupus logo


Looms for Lupus

Looms for Lupus is a nonprofit organization that provides awareness, outreach and resources to minority families, those affected by lupus, their families and caregivers. Looms for Lupus provides in-person bilingual support groups, education and outreach through multiple avenues such as hands-on workshops, informational clinics, bilingual resources, and psychosomatic support groups.

Looms for Lupus logo


Lupus Alliance of Upstate New York

Serving 33 counties in upstate New York, this organization provides information and support to people living with lupus, caregivers and families impacted by lupus.

Lupus Alliance of Upstate New York logo


Lupus Foundation of Pennsylvania

The mission of the Lupus Foundation of Pennsylvania is to promote awareness, education, services and research for those affected by lupus.

Lupus Foundation of PA


Lupus LA

Lupus LA is a non-profit health organization, dedicated to finding the causes of and a cure for lupus while providing support, services and hope to all who have lupus. Lupus LA raises funds for supporting medical research, as well as provides patient services, and promotes awareness and advocacy.

Lupus LA logo


Lupus Society of Illinois

The Lupus Society of Illinois promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.

Lupus Society of Illinois logo

Online Communities

ALL IN™ On Facebook

Stay up to date on resources for lupus nephritis, get helpful tips, inspiring stories, and more. Follow ALL IN on Facebook and find strength in community.

ALL IN™ On Facebook


More Than Lupus

Created by a lupus advocate who has lived with lupus for 27 years, this site offers a space for those living with lupus to connect, grow, and inspire others throughout their lupus journey.

More than Lupus


MyLupusTeam

A free social network designed for those living with lupus.

My lupus team



The Mighty

The Mighty is a digital health community that empowers and connects people dealing with health challenges like lupus nephritis. The site features a story from Gabrielle, who manages a career, travel and volunteer advocacy while living with lupus nephritis.

The Mighty logo

Can You Add to this List?

Do you know of any other groups or online communities for people affected by lupus or lupus nephritis? If so, tell us!

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