Explore these Helpful Links
If you're looking for more information about lupus or lupus nephritis, or you want to connect with other members of the lupus/lupus nephritis community, the following groups can help. At this time, there are no known advocacy groups specifically focused on lupus nephritis as a standalone disease... but that will likely change as awareness of this disease increases. Maybe you can play a role in getting something started!
Do you know of any other lupus or lupus nephritis groups that may be missing from this list? If so, let us know!
Please note that Aurinia does not endorse or monitor the activities and content of advocacy groups, their websites or third-party online communities.
The American Association of Kidney Patients is dedicated to improving the quality of life for people with kidney disease through education, advocacy and management along with fostering support communities.
An all-volunteer national nonprofit organization dedicated to enhancing the quality of life for those impacted by lupus and allied diseases and other conditions of unmet need by fostering collaboration among stakeholders and promoting innovative advocacy, awareness and biomedical research programs.
A national organization devoted to improving the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.
The mission of the Lupus Research Alliance is to find better treatments and ultimately prevent and cure systemic lupus erythematosus (SLE or lupus) by supporting medical research.
An organization in the U.S. dedicated to the awareness, prevention, and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk.
An organization committed exclusively to supporting research to better understand and treat Focal Segmental Glomerulosclerosis (FSGS), Nephrotic Syndrome, and related kidney diseases.
Regional and Local Groups
Kaleidoscope Fighting Lupus educates the public and informs the medical community about lupus, advocates for an earlier life-saving diagnosis, supports people living with lupus and collaborates with government and foundations to fund research towards a cure.
Looms for Lupus
Looms for Lupus is a nonprofit organization that provides awareness, outreach and resources to minority families, those affected by lupus, their families and caregivers. Looms for Lupus provides in-person bilingual support groups, education and outreach through multiple avenues such as hands-on workshops, informational clinics, bilingual resources, and psychosomatic support groups.
Serving 33 counties in upstate New York, this organization provides information and support to people living with lupus, caregivers and families impacted by lupus.
The mission of the Lupus Foundation of Pennsylvania is to promote awareness, education, services and research for those affected by lupus.
Lupus LA is a non-profit health organization, dedicated to finding the causes of and a cure for lupus while providing support, services and hope to all who have lupus. Lupus LA raises funds for supporting medical research, as well as provides patient services, and promotes awareness and advocacy.
The Lupus Society of Illinois promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
Stay up to date on resources for lupus nephritis, get helpful tips, inspiring stories, and more. Follow ALL IN on Facebook and find strength in community.
Created by a lupus advocate who has lived with lupus for 27 years, this site offers a space for those living with lupus to connect, grow, and inspire others throughout their lupus journey.
A free social network designed for those living with lupus.
The Mighty is a digital health community that empowers and connects people dealing with health challenges like lupus nephritis. The site features a story from Gabrielle, who manages a career, travel and volunteer advocacy while living with lupus nephritis.
Can You Add to this List?
Do you know of any other groups or online communities for people affected by lupus or lupus nephritis? If so, tell us!
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