Video Testimonials
There is no substitute for hearing directly from people living with lupus nephritis. Shared experiences can go far to help increase your understanding of your condition and provide you with tools and tips to help manage it. Take a moment to explore our newly expanded video library and hear from others with lupus nephritis as they share their challenges, discoveries and triumphs.
Nas & Pam
Following an unexpected diagnosis of lupus nephritis and lupus, a young man discovers a new outlook on life with the loving support of his mom.
Sara
Leaving a job she loved at age 30 because of lupus nephritis, a professional woman learns to adjust her lifestyle to accommodate for her diagnosis.
Dina (Part 1)
A young woman speaks about her challenging path to a lupus nephritis and lupus diagnosis and her goal of not letting her diagnosis define her.
Dina (Part 2)
The desire to become pregnant becomes a journey filled with both fear and hope.
Carly
A determined woman takes us through her daily journey of living with lupus nephritis and ways she tries to better manage her health and wellness.
Gabrielle
A 35-year-old woman on dialysis learns to live a fulfilling life with the help of her husband and healthcare team.
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First-hand Perspectives
If you are living with lupus nephritis, we'd like to hear your story.
The following are quotes from actual people living with lupus nephritis. Read on to learn more about their personal stories.
On challenges
It's hard to keep up with all the doctors and know who to ask what, and who's responsible for watching certain levels and monitoring specific things.
MaryAnna, diagnosed with lupus in 2015; showing signs of lupus nephritis
Every day is definitely a balancing act.
Dina, diagnosed with lupus nephritis in 1994
On hope and perseverance
…When life punches, do you sit back and fall or do you get back up and punch? You have to fight every day no matter what it is. There's days you may think I don't want to go to work today. There's some people who wish they could.
Nas, diagnosed with lupus nephritis in 2017
There's not a lot that we can control, but when you feel like you're doing the very best to take care of you, you feel empowered and it gives you more hope to live a good life with this disease.
Gabrielle, diagnosed with lupus nephritis in 2009
Advice for newly diagnosed patients
I find myself leading by example, and if I want other patients to do well, I have to do what I need to do to do well.
Carly, diagnosed with lupus nephritis in 2011
Very quickly I realized that there was a lot of work I had to do outside of the doctor's office in order to make my life successful. One of those was exercise, one of those was really listening to my body, and becoming much more self-aware than I had ever been in the past.
Sara, diagnosed with lupus nephritis in 2004