Video Testimonials
There is no substitute for hearing directly from people living with lupus nephritis. Shared experiences can go far to help increase your understanding of your condition and provide you with tools and tips to help manage it. Take a moment to explore our newly expanded video library and hear from others with lupus nephritis as they share their challenges, discoveries and triumphs.
Nas & Pam
Following an unexpected diagnosis of lupus nephritis and lupus, a young man discovers a new outlook on life with the loving support of his mom.
Sara
Leaving a job she loved at age 30 because of lupus nephritis, a professional woman learns to adjust her lifestyle to accommodate for her diagnosis.
Dina (Part 1)
A young woman speaks about her challenging path to a lupus nephritis and lupus diagnosis and her goal of not letting her diagnosis define her.
Dina (Part 2)
The desire to become pregnant becomes a journey filled with both fear and hope.
Carly
A determined woman takes us through her daily journey of living with lupus nephritis and ways she tries to better manage her health and wellness.
Gabrielle
A 35-year-old woman on dialysis learns to live a fulfilling life with the help of her husband and healthcare team.
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First-hand Perspectives
If you are living with lupus nephritis, we'd like to hear your story.
The following are quotes from actual people living with lupus nephritis. Read on to learn more about their personal stories.
On challenges
I've had to miss out on work, weddings, and many other personal events. It can be hard to really get across that it’s not just ‘I don’t feel well’.
MaryAnna, diagnosed with lupus in 2015; showing signs of lupus nephritis
Upon receiving my diagnosis, I'd say the biggest thing now that I can look back on it was denial. I was still intent on doing everything that I was doing before, and not letting the diagnosis of lupus or lupus nephritis change me or my life. I now know that that's not possible.
Carly, diagnosed with lupus nephritis in 2011
On hope and perseverance
…Stay ambitious, have ambition to go wherever you wanna’ go. Keep dreaming…
Nas, diagnosed with lupus nephritis in 2017
One of my biggest philosophies in life even prior to my diagnosis is trying to remain as positive as possible and just making sure that we're focused on the people, the things, and the experiences that matter the most and to let go of all of the small things that really don't matter in the long run.
Dina, diagnosed with lupus nephritis in 1994
Advice for newly diagnosed patients
It's good to cry and be angry, whatever emotions you feel are perfectly normal, and discussing these with trusted individuals is a good first step in living your best life.
Gabrielle, diagnosed with lupus nephritis in 2009
I have personally found that advocating for yourself is probably the most important part of the doctor/patient relationship. You have to go in armed and ready, not in a confrontational way, but in a collaborative way.
Sara, diagnosed with lupus nephritis in 2004