There is no substitute for hearing directly from people living with lupus nephritis. Shared experiences can go far to help increase your understanding of your condition and provide you with tools and tips to help manage it. Take a moment to explore our newly expanded video library and hear from others with lupus nephritis as they share their challenges, discoveries and triumphs.
Nas & Pam
Following an unexpected diagnosis of lupus nephritis and lupus, a young man discovers a new outlook on life with the loving support of his mom.
Dina (Part 1)
A young woman speaks about her challenging path to a lupus nephritis and lupus diagnosis and her goal of not letting her diagnosis define her.
A determined woman takes us through her daily journey of living with lupus nephritis and ways she tries to better manage her health and wellness.
Stay Connected. Stay Informed.
- Ongoing news and updates about lupus nephritis
- A USB drive that contains helpful printable resources
If you are living with lupus nephritis, we'd like to hear your story.
The following are quotes from actual people living with lupus nephritis. Read on to learn more about their personal stories.
Every month, and sometimes more than once a month, I have doctors' appointments to keep. Having a full-time job makes this challenging.
Gabrielle, diagnosed with lupus nephritis in 2009
I've had to miss out on work, weddings, and many other personal events. It can be hard to really get across that it’s not just ‘I don’t feel well’.
MaryAnna, diagnosed with lupus in 2015; showing signs of lupus nephritis
On hope and perseverance
I have a lot of stuff that I have planned for my life and how I envision it. So, it helps to move out... things and experiences that don't really matter.
Dina, diagnosed with lupus nephritis in 1994
I'm able to put one foot in front of the other and still have a life worth living.
Sara, diagnosed with lupus nephritis in 2004
Advice for newly diagnosed patients
I find myself leading by example, and if I want other patients to do well, I have to do what I need to do to do well.
Carly, diagnosed with lupus nephritis in 2011
I have to listen to my body, which is something my mom always told me, listen to your body because you know when you're tired. Don't push yourself past where you can go.
Nas, diagnosed with lupus nephritis in 2017