There is no substitute for hearing directly from people living with lupus nephritis. Shared experiences can go far to help increase your understanding of your condition and provide you with tools and tips to help manage it. Take a moment to explore our newly expanded video library and hear from others with lupus nephritis as they share their challenges, discoveries and triumphs.
Nas & Pam
Following an unexpected diagnosis of lupus nephritis and lupus, a young man discovers a new outlook on life with the loving support of his mom.
Dina (Part 1)
A young woman speaks about her challenging path to a lupus nephritis and lupus diagnosis and her goal of not letting her diagnosis define her.
A determined woman takes us through her daily journey of living with lupus nephritis and ways she tries to better manage her health and wellness.
Stay Connected. Stay Informed.
- Ongoing news and updates about lupus nephritis
- A USB drive that contains helpful printable resources
If you are living with lupus nephritis, we'd like to hear your story.
The following are quotes from actual people living with lupus nephritis. Read on to learn more about their personal stories.
I've had to miss out on work, weddings, and many other personal events. It can be hard to really get across that it’s not just ‘I don’t feel well’.
MaryAnna, diagnosed with lupus in 2015; showing signs of lupus nephritis
Living with lupus nephritis takes a lot of adjusting... not just with me, but with the people around me, because some days they're used to me being up and ready to go... then other days I can't lift my head up off the pillow.
Dina, diagnosed with lupus nephritis in 1994
On hope and perseverance
…This is not a normal life. I didn't ask for it, but then again, I have to accept it. That was the biggest thing about it.
Nas, diagnosed with lupus nephritis in 2017
I'm able to put one foot in front of the other and still have a life worth living.
Sara, diagnosed with lupus nephritis in 2004
Advice for newly diagnosed patients
Initially in my journey I had a difficult time finding support. I also did not want support at the beginning, but I did eventually seek out resources online as well as in person, but mostly online where I did find a group of patients and caregivers of people affected by lupus, lupus nephritis, and other chronic illnesses. It has been paramount to me getting along on my journey.
Carly, diagnosed with lupus nephritis in 2011
It's good to cry and be angry, whatever emotions you feel are perfectly normal, and discussing these with trusted individuals is a good first step in living your best life.
Gabrielle, diagnosed with lupus nephritis in 2009