There is no substitute for hearing directly from people living with lupus nephritis. Shared experiences can go far to help increase your understanding of your condition and provide you with tools and tips to help manage it. Take a moment to explore our newly expanded video library and hear from others with lupus nephritis as they share their challenges, discoveries and triumphs.
Nas & Pam
Following an unexpected diagnosis of lupus nephritis and lupus, a young man discovers a new outlook on life with the loving support of his mom.
Dina (Part 1)
A young woman speaks about her challenging path to a lupus nephritis and lupus diagnosis and her goal of not letting her diagnosis define her.
A determined woman takes us through her daily journey of living with lupus nephritis and ways she tries to better manage her health and wellness.
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If you are living with lupus nephritis, we'd like to hear your story.
The following are quotes from actual people living with lupus nephritis. Read on to learn more about their personal stories.
The biggest challenge is accepting the transformation of your life... having to stop working after one year after diagnosis, the burden on my husband and family, the physical limitations, and the amount of medication all created additional hurdles.
Monique, diagnosed with lupus nephritis in 2010
I've had to miss out on work, weddings, and many other personal events. It can be hard to really get across that it’s not just ‘I don’t feel well’.
MaryAnna, diagnosed with lupus in 2015; showing signs of lupus nephritis
On hope and perseverance
There's not a lot that we can control, but when you feel like you're doing the very best to take care of you, you feel empowered and it gives you more hope to live a good life with this disease.
Gabrielle, diagnosed with lupus nephritis in 2009
I'm able to put one foot in front of the other and still have a life worth living.
Sara, diagnosed with lupus nephritis in 2004
Advice for newly diagnosed patients
They need to know that it will take a little time to figure out how to live with a chronic illness and give themselves patience and kindness during that time, because there will be setbacks and challenges to face and fight.
Dina, diagnosed with lupus nephritis in 1994
I find myself leading by example, and if I want other patients to do well, I have to do what I need to do to do well.
Carly, diagnosed with lupus nephritis in 2011