There is no substitute for hearing directly from people living with lupus nephritis. Shared experiences can go far to help increase your understanding of your condition and provide you with tools and tips to help manage it. Take a moment to explore our newly expanded video library and hear from others with lupus nephritis as they share their challenges, discoveries and triumphs.
Nas & Pam
Following an unexpected diagnosis of lupus nephritis and lupus, a young man discovers a new outlook on life with the loving support of his mom.
Dina (Part 1)
A young woman speaks about her challenging path to a lupus nephritis and lupus diagnosis and her goal of not letting her diagnosis define her.
A determined woman takes us through her daily journey of living with lupus nephritis and ways she tries to better manage her health and wellness.
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If you are living with lupus nephritis, we'd like to hear your story.
The following are quotes from actual people living with lupus nephritis. Read on to learn more about their personal stories.
Upon receiving my diagnosis, I'd say the biggest thing now that I can look back on it was denial. I was still intent on doing everything that I was doing before, and not letting the diagnosis of lupus or lupus nephritis change me or my life. I now know that that's not possible.
Carly, diagnosed with lupus nephritis in 2011
Every month, and sometimes more than once a month, I have doctors' appointments to keep. Having a full-time job makes this challenging.
Gabrielle, diagnosed with lupus nephritis in 2009
On hope and perseverance
I have a lot of stuff that I have planned for my life and how I envision it. So, it helps to move out... things and experiences that don't really matter.
Dina, diagnosed with lupus nephritis in 1994
There's gonna’ be ups, there's gonna’ be downs, but from where I've came until where I am now, I have so much to be appreciative for.
Nas, diagnosed with lupus nephritis in 2017
Advice for newly diagnosed patients
Very quickly I realized that there was a lot of work I had to do outside of the doctor's office in order to make my life successful. One of those was exercise, one of those was really listening to my body, and becoming much more self-aware than I had ever been in the past.
Sara, diagnosed with lupus nephritis in 2004
Stay organized with a spreadsheet. Keep track of your symptoms... the meds you're on, when you take them... each doctor's appointment.
MaryAnna, diagnosed with lupus in 2015; showing signs of lupus nephritis