There is no substitute for hearing directly from people living with lupus nephritis. Shared experiences can go far to help increase your understanding of your condition and provide you with tools and tips to help manage it. Take a moment to explore our newly expanded video library and hear from others with lupus nephritis as they share their challenges, discoveries and triumphs.
Nas & Pam
Following an unexpected diagnosis of lupus nephritis and lupus, a young man discovers a new outlook on life with the loving support of his mom.
Dina (Part 1)
A young woman speaks about her challenging path to a lupus nephritis and lupus diagnosis and her goal of not letting her diagnosis define her.
A determined woman takes us through her daily journey of living with lupus nephritis and ways she tries to better manage her health and wellness.
Stay Connected. Stay Informed.
- Ongoing news and updates about lupus nephritis
- A USB drive that contains helpful printable resources
If you are living with lupus nephritis, we'd like to hear your story.
The following are quotes from actual people living with lupus nephritis. Read on to learn more about their personal stories.
Every month, and sometimes more than once a month, I have doctors' appointments to keep. Having a full-time job makes this challenging.
Gabrielle, diagnosed with lupus nephritis in 2009
It's hard to keep up with all the doctors and know who to ask what, and who's responsible for watching certain levels and monitoring specific things.
MaryAnna, diagnosed with lupus in 2015; showing signs of lupus nephritis
On hope and perseverance
One of my biggest philosophies in life even prior to my diagnosis is trying to remain as positive as possible and just making sure that we're focused on the people, the things, and the experiences that matter the most and to let go of all of the small things that really don't matter in the long run.
Dina, diagnosed with lupus nephritis in 1994
There's gonna’ be ups, there's gonna’ be downs, but from where I've came until where I am now, I have so much to be appreciative for.
Nas, diagnosed with lupus nephritis in 2017
Advice for newly diagnosed patients
Initially in my journey I had a difficult time finding support. I also did not want support at the beginning, but I did eventually seek out resources online as well as in person, but mostly online where I did find a group of patients and caregivers of people affected by lupus, lupus nephritis, and other chronic illnesses. It has been paramount to me getting along on my journey.
Carly, diagnosed with lupus nephritis in 2011
Very quickly I realized that there was a lot of work I had to do outside of the doctor's office in order to make my life successful. One of those was exercise, one of those was really listening to my body, and becoming much more self-aware than I had ever been in the past.
Sara, diagnosed with lupus nephritis in 2004