There is no substitute for hearing directly from people living with lupus nephritis. Shared experiences can go far to help increase your understanding of your condition and provide you with tools and tips to help manage it. Take a moment to explore our newly expanded video library and hear from others with lupus nephritis as they share their challenges, discoveries and triumphs.
Nas & Pam
Following an unexpected diagnosis of lupus nephritis and lupus, a young man discovers a new outlook on life with the loving support of his mom.
Dina (Part 1)
A young woman speaks about her challenging path to a lupus nephritis and lupus diagnosis and her goal of not letting her diagnosis define her.
A determined woman takes us through her daily journey of living with lupus nephritis and ways she tries to better manage her health and wellness.
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If you are living with lupus nephritis, we'd like to hear your story.
The following are quotes from actual people living with lupus nephritis. Read on to learn more about their personal stories.
Living with lupus nephritis takes a lot of adjusting... not just with me, but with the people around me, because some days they're used to me being up and ready to go... then other days I can't lift my head up off the pillow.
Dina, diagnosed with lupus nephritis in 1994
Upon receiving my diagnosis, I'd say the biggest thing now that I can look back on it was denial. I was still intent on doing everything that I was doing before, and not letting the diagnosis of lupus or lupus nephritis change me or my life. I now know that that's not possible.
Carly, diagnosed with lupus nephritis in 2011
On hope and perseverance
…This is not a normal life. I didn't ask for it, but then again, I have to accept it. That was the biggest thing about it.
Nas, diagnosed with lupus nephritis in 2017
There's not a lot that we can control, but when you feel like you're doing the very best to take care of you, you feel empowered and it gives you more hope to live a good life with this disease.
Gabrielle, diagnosed with lupus nephritis in 2009
Advice for newly diagnosed patients
Very quickly I realized that there was a lot of work I had to do outside of the doctor's office in order to make my life successful. One of those was exercise, one of those was really listening to my body, and becoming much more self-aware than I had ever been in the past.
Sara, diagnosed with lupus nephritis in 2004
Stay organized with a spreadsheet. Keep track of your symptoms... the meds you're on, when you take them... each doctor's appointment.
MaryAnna, diagnosed with lupus in 2015; showing signs of lupus nephritis