Video Testimonials
There is no substitute for hearing directly from people living with lupus nephritis. Shared experiences can go far to help increase your understanding of your condition and provide you with tools and tips to help manage it. Take a moment to explore our newly expanded video library and hear from others with lupus nephritis as they share their challenges, discoveries and triumphs.
Nas & Pam
Following an unexpected diagnosis of lupus nephritis and lupus, a young man discovers a new outlook on life with the loving support of his mom.
Sara
Leaving a job she loved at age 30 because of lupus nephritis, a professional woman learns to adjust her lifestyle to accommodate for her diagnosis.
Dina (Part 1)
A young woman speaks about her challenging path to a lupus nephritis and lupus diagnosis and her goal of not letting her diagnosis define her.
Dina (Part 2)
The desire to become pregnant becomes a journey filled with both fear and hope.
Carly
A determined woman takes us through her daily journey of living with lupus nephritis and ways she tries to better manage her health and wellness.
Gabrielle
A 35-year-old woman on dialysis learns to live a fulfilling life with the help of her husband and healthcare team.
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First-hand Perspectives
If you are living with lupus nephritis, we'd like to hear your story.
The following are quotes from actual people living with lupus nephritis. Read on to learn more about their personal stories.
On challenges
The biggest symptom that I face with lupus nephritis is fatigue, that’s what lingers on... Its crushing, immobilizing, treacherous fatigue. It's your eyes can't even open. It's you can't even find the words to speak. It is an exhaustion that is unlike anything else.
Sara, diagnosed with lupus nephritis in 2004
Every month, and sometimes more than once a month, I have doctors' appointments to keep. Having a full-time job makes this challenging.
Gabrielle, diagnosed with lupus nephritis in 2009
On hope and perseverance
There's gonna’ be ups, there's gonna’ be downs, but from where I've came until where I am now, I have so much to be appreciative for.
Nas, diagnosed with lupus nephritis in 2017
I have a lot of stuff that I have planned for my life and how I envision it. So, it helps to move out... things and experiences that don't really matter.
Dina, diagnosed with lupus nephritis in 1994
Advice for newly diagnosed patients
Initially in my journey I had a difficult time finding support. I also did not want support at the beginning, but I did eventually seek out resources online as well as in person, but mostly online where I did find a group of patients and caregivers of people affected by lupus, lupus nephritis, and other chronic illnesses. It has been paramount to me getting along on my journey.
Carly, diagnosed with lupus nephritis in 2011
Stay organized with a spreadsheet. Keep track of your symptoms... the meds you're on, when you take them... each doctor's appointment.
MaryAnna, diagnosed with lupus in 2015; showing signs of lupus nephritis